Lately i have been reflecting on what i really want out of life. I've has the past 3 weeks off from going to the gym and it has given me time to think and also do things that i really want to do.

The last few months have all been about trying to walk again in my new leg braces. I have about one good day a month where I'm able to do more than a few steps. The problem being is things have become quite repetitive week in week out. Gym twice, physio, doctors, consultants.

If i have an appointment in the morning, for me that is my whole day as i get so exhausted i will go to bed till all afternoon. I'm not getting any time to do things i actually want to do. I've decided that i don't want my life to be all able trying to walk again. I want to actually have a life.

Being in a wheelchair is not the end of the world. Ive been on my chair for over 2 years now, I'm used to it. Walking is alien to me now. The chair hasn't stopped me doing anything, its my other conditions and exhaustion that have.

I decided in September i am going to do a college course on a Saturday morning for 6 weeks. I've also found a hydrotherapy pool to go to on a Monday., which i think will mean dropping a gym session.

In other news I'm struggling with food. My stomach has slowed down because of my condition. I never thought i would be in a position where i have to eat as many calories as i can. I always wanted to lose weight and now its the opposite. Also my appointment with my gastro consultant was moved from September to April 2015, eeeeek. However is has now been moved to October this year, phew.

Anyway your get a gold star for reading all this, ill leave you with picture of  a scissor case that i made.

About Me

About Me

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Loves textiles, stitching and anything cute. Daily battle with ehlers danlos syndrome, gastroparesis and tube fed x