Hospital

Well i was doing so well and then a virus got me. It took away my ability to sit up, which as some of you know am in a wheelchair so i need all the muscles i can get to be able to transfer.

I spent 4 days in bed and then begged mum to take me to the gym. I go for 2 hours a week and its not just about exercise, its about the social side as well. My gym instructor babysat me for abit and took me to see his dogs. I love animals so it really cheered me up.

Mum made a doctors appointment against my wishes hehe. I just thought i would get better, however the doctor took one look at me and sent me to the hospital.

I don't remember much of my 3 week stay but i will tell you the bits i do remember. I had to be hoisted in and out of bed and i couldn't hold my head up. My bladder stopped working so i had to be catheterised. I stopped eating and drinking as my swallowing was affected. I was the put on a feeding tube. Its a tube that goes up your nose and into your stomach. I also had to have endless drips and replacement vitamins as i lost some. They also messed with my anti depressants and put me on another one. That was hell as i turned into a monster. Luckily I'm back on my ones now and nice Hayley is back hehe.

Slowly i started to recover and came out last Monday. There was a problem though. The hospital said they had referred me to rehab but lied as they hadn't even done the referral. I rang my o.t and she got me into the same one I've been in the last 2 years. I am sooo grateful to my physio and o.t. I know i can count on them if i get ill.

After spending 3 days in bed at home, i finally had a place at rehab and that's where i am now. Due to my ehlers danlos syndrome and probably the virus, my stomach muscles don't work well so i have lost a huge amount of weight and am on endless medication.

I am relearning how to sit up and use my muscles again. After being in bed for about a month, i have got very weak.

There were times that i didn't want to carry on. I didn't want to start all over again. But slowly i got there.

Can't wait to spend Christmas with my family and happily see the new year.

Merry Christmas to you all xx

About Me

About Me

My photo
Loves textiles, stitching and anything cute. Daily battle with ehlers danlos syndrome, gastroparesis and tube fed x

Followers

IMPORTANT LINKS

DISCLAIMER